Il est temps de parler de l'épilepsie et de la discrimination dans l'emploi

Il est temps de parler de l'épilepsie et de la discrimination dans l'emploi

octobre 14, 2019 0 Par admin

Translating…

Woman looking stressed at her office desk.

this video, I wanted to throw in another firsthand account of workplace discrimination against people with disabilities. » data-reactid= »22″ type= »text »>After seeing this video, I wanted to throw in another firsthand account of workplace discrimination against people with disabilities.

epilepsy. That’s what’s going on.” One faculty chair, we’ll call him “Doug,” said that wasn’t something he’d mention in other interviews. So you can imagine my surprise when they decided to hire me. » data-reactid= »23″ type= »text »>Eleven years ago, I interviewed for an administrative assistant job at a college. It was a group interview with the assistant dean and all the faculty chairs. The assistant dean, my would-be boss, was asking if I had reliable transportation, if my car was in good condition. I kept saying, “I can’t drive now but I can in February and until then my husband will take me.” He kept asking me why. Afraid they’d think I had a DUI, I finally said, “I have epilepsy. That’s what’s going on.” One faculty chair, we’ll call him “Doug,” said that wasn’t something he’d mention in other interviews. So you can imagine my surprise when they decided to hire me.

I got my drivers’ license back that February and things were OK for a while. I had a two-year seizure-free streak. Then I had another seizure, and it made me afraid enough to wait a little longer than six months to start driving. A little longer became eight years until this year, when I finally felt stable enough to do it. Then I had another seizure and the cycle started again. My husband had to drive me everywhere.

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By this point, the school had done away with assistant deans because the state had slashed the budget so much. The dean herself became my boss, and when she retired, she was replaced by a faculty chair — Doug.

file for ADA accommodations. So I did. I was lucky — at a smaller office, they wouldn’t have had to comply. » data-reactid= »27″ type= »text »>The previous dean had been casually cool about my needs, like having to miss more hours than usual, working from home on occasion and having dimmer lighting in my office. When Doug took over, he wasn’t having it. “With it all dark it looks like you’re not in there,” he said. (How hard is it to say “Beppy, you in there?”) If I wanted that lamp, he said, I’d have to file for ADA accommodations. So I did. I was lucky — at a smaller office, they wouldn’t have had to comply.

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mental health issues got worse, I haven’t been able to hold down a job since that day six years ago. My husband makes enough for us to live comfortably, but I’m incredibly lucky in that regard. We had an unspoken office culture rule of “don’t talk about your personal life at work,” but from all the pictures of co-workers’ pets and babies and vacations, I know that just meant “don’t talk about anything that might be out of someone’s comfort zone.”

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perpetuating the stigma we’ve been living with for at least a millennium, if not longer. That’s why I love that Greg Grunberg’s charity is called talkaboutit.org. People need to talk about epilepsy and other health conditions, and we need to lead the charge. So unless you feel your employment might be at risk, go ahead and talk about it. » data-reactid= »33″ type= »text »>Being told not to talk about it is perpetuating the stigma we’ve been living with for at least a millennium, if not longer. That’s why I love that Greg Grunberg’s charity is called talkaboutit.org. People need to talk about epilepsy and other health conditions, and we need to lead the charge. So unless you feel your employment might be at risk, go ahead and talk about it.

Read more stories like this on The Mighty:

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Why We Need Changing Places for Older Children » data-reactid= »36″ type= »text »>Why We Need Changing Places for Older Children

Home Safety Considerations for People With Epilepsy » data-reactid= »37″ type= »text »>Home Safety Considerations for People With Epilepsy


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